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Vitamin B12 deficiency Charity Support Group

The B12 Deficiency Support Group (B12d, for short) is a charity. Our aims are to:

  • Raise awareness of this condition amongst doctors and the general public, so that people can be diagnosed appropriately.
  • Explain the signs and symptoms that a doctor or person who is diagnosing themselves should look out for, and how to make sure that you reach the right diagnosis and don't confuse B12 deficiency with something else.
  • Ensure treatment is tailored to the needs of the patient, and where possible, make treatment available free at the point of need.

We rely entirely on donations, and our donations are used almost entirely to buy B12 to fulfil requests.  NHS does not fund any of our B12, although NHS will fund some B12 for some patients - directly via your doctor. We show here and in our audits that a much wider range of conditions can beneficially be treated with Vitamin B12 replacement therapy.

If you wish to give whilst you shop online, please click through to Amazon via GiveGet.  You can also buy B12d badges, pens and keyrings, click here (takes you to an external website)

Lastly, please can you help us. 1) use the calculator to check your symptoms 2) if you need advice, send an email to notifications@b12d.org 3) if you need B12, please use the Members' Area to request (if you email to request, it creates a lot of extra work.  If you put your symptoms on the request area, Dr Chandy won't see them) 4) please donate.  We can't send B12 unless we can afford to buy it.

Are you B12 Deficient? Use our diagnstic calculator to find your diagnosis and how we can help you
Charity Events - View our calendar of events and see what is coming up for B12d
Success Stories - Read success stories on patients of Dr Chandy and other B12 Patients

Finding your way around the web site

  • You might start with What is B12d?, and what causes deficiency.
  • Look at some patient testimonials and television documentaries on the subject - you may recognise your own symptoms.
  • Take the B12 deficiency calculator (big grey button, right), then take the results and the protocol to your GP to discuss.
  • If you want to understand how cost-effective B12 replacement therapy is, then this might be a good place.
  • You will also find the most recent updates and news below.

Dr Chandy (Kayalackakom)

Dr Chandy has been an NHS GP in Horden, County Durham, United Kingdom for 40years and during that time has amassed a wealth of experience.

When people came with tiredness and unexplained neurological symptoms, Dr Chandy began to suspect something more and tested these people for the amount of vitamin B12 they had in their bloodstream.

Many many people have now benefited from vitamin B12 replacement therapy for a variety of conditions which you can find out about by exploring this site.

You can also find out about Dr Chandy's work from the BBC Documentary

To contact Dr Chandy and the Support Group, please email notifications@b12d.net. Please note it may take 5-10 days to get a reply.

Dr Chandy

B12d Charity Support Group Blog

  • 02
    APR

    Does B12 deficiency affect blood pressure?

    There was a recent article on livestrong.com confirming...

    Read More

  • 04
    MAR

    Where to get help - Protocols for diagnosing and treating B12 and hypoadrenalism (Addison's disease)

    How do you check if you have B12 deficiency? The best w...

    Read More

  • 26
    NOV

    I feel terrible AFTER my injection

    Some people complain that, at just the time when you th...

    Read More

  • 29
    OCT

    Multiple Sclerosis - does it exist?

    Multiple Sclerosis - a typically incurable and fatal co...

    Read More

Frankie tells of how she suffered, the tests she had to endure until doctors worked out what was wrong, and what a difference it has made.
Dr Chandy was nominated for the North East Local Heroes award. The interviewer was at first surprised - people don't get awards for doing what they are paid to do - but she persisted.
New documentary out from Elissa Leonard in North America, featuring Sally Pacholok and many other internationally renowned experts.
Susan gets very tired, which isn't much fun especially as she has so much to do. Here she tells her story.
Janette first appeared in the BBC InsideOut documentary in October 2006. Since then the NHS has forced her doctor to withdraw B12 replacement therapy on a number of occasions, and she tells of her struggles with having B12 and then having it taken away.
She has bravely agreed to be filmed without her usual wig, but her memory is playing up because it is so long since her last injection.
June describes her suffering when doctors didn't follow the standard protocol after any stomach or intestinal operation - to offer B12 replacement therapy
The Scottish Parliament discusses Pernicious Anaemia and vitamin B12 deficiency on Wednesday 7 March 2012.
This video is over 1 hour long and represents real political change - we are at last on our way.
Donna, like so many women, wants to live a normal life. Vitamin B12 could give her that chance.
The local MP (Grahame Morris MP for Easington - who was a BMS (BioMedical Scientist) in the labs at Sunderland Royal Infirmary) interviews people with B12 deficiency to hear their story (August 27 2010). Here Jane describes the symptoms, and how she can't wait for her next B12 injection (in fact, she knows that she needs injections every 2 weeks because she's keeping a diary of the symptoms). We're restricted how often the GP can give injections, which is why we want to raise awareness.
Julia found her eyesight going as her eyes refused to focus on the same things as each other. She's been for all sorts of tests and treatment, but now that she's on B12 replacement therapy she's starting to see an improvement.